Currently browsing: Items authored or edited by Maddie Blackburn

Earle, Sarah; Blackburn, Maddie; Chambers, Lizzie; Downing, Julia; Flemming, Kate; Hale, Jamie; Marston, Hannah R.; O'Dell, Lindsay; Sinason, Valerie and Whitney, Sally (2024). 'I could cry all day, every day, about my losses': Caring for young adults with life-shortening conditions — families' experiences of disruption and loss. In: Jones, Kerry and Horne, Joanna eds. Understanding the Grief and Loss Experiences of Carers: Research, Practitioner and Personal Perspectives. Routledge Key Themes in Health and Safety. London: Routledge, pp. 27–40.

Earle, Sarah; Blackburn, Maddie; Chambers, Lizzie; Downing, Julia; Flemming, Kate; Hale, Jamie; Marston, Hannah; O'Dell, Lindsay and Sinason, Valerie (2024). It's bittersweet, it's uncomfortable, yes, but it's necessary. Methodological reflections on the experiences of young adults with life-shortening conditions on being involved in inclusive qualitative research. Progress in Palliative Care, 32(6) pp. 438–445.

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Earle, Sarah; Blackburn, Maddie; Chambers, Lizzie; Downing, Julia; Fleming, Kate; Hale, Jamie; Marston, Hannah R.; O'Dell, Lindsay; Sinason, Valerie; Watts, Lucy and Whitney, Sally (2022). 'Whose life are they going to save? It's probably not going to be mine!' Living with a Life-shortening Condition during the Coronavirus (COVID-19) Pandemic: A grounded theory study of embodied precarity. Qualitative Health Research, 32(14) pp. 2055–2065.

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Earle, Sarah and Blackburn, Maddie (2021). Young adults with life-limiting or life-threatening conditions: sexuality and relationships support. BMJ Supportive & Palliative Care, 11(2) pp. 163–169.

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Earle, Sarah and Blackburn, Maddie (2021). Involving young people and adults with life-limiting conditions in research on sex: the intersections of taboo and vulnerability. International Journal of Social Research Methodology, 24(5) pp. 545–551.

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Harris, Nicky; Noyes, Jane; Fraser, Lorna; Lapwood, Susie; Harrop, Emily; Blackburn, Maddie; Price, Jayne; Chambers, Lizzie and Bluebond-Langer, Myra (2020). Managing and sharing research data in children's palliative care: Risks, benefits and imponderables. Journal of advanced nursing, 76(11) pp. 2794–2797.

Harris, Nicky; Blackburn, Maddie; Noyes, Jane; Aldridge, Jan; Lapwood, Suzie; Dunbar, Helen; Price, Jane; Mitchell, Sarah; Chambers, Lizzie and Bluebond‐Langner, Myra (2019). Undertaking Doctoral Research with Children and Young People with Life‐limiting or Life‐threatening Conditions. Journal of Advanced Nursing, 75(12) pp. 3183–3185.

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Blackburn, Maddie; Chambers, Lizzie and Earle, Sarah (2017). Editorial - Talking about sex, relationships and intimacy: new guidance and standards for nurses and other health and social care professionals working with young people with life-limiting and life-threatening conditions. Journal of Advanced Nursing, 73(10) pp. 2265–2267.

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Earle, Sarah; Blackburn, Maddie; Lizzie, Chambers; Downing, Julia; Flemming, Kate; Hale, Jamie; Marston, Hannah; O'Dell, Lindsay; Sinason, Valerie; Watts, Lucy and Whitney, Sally (2022). Bearing witness at a time of crisis: Methodological reflections on interviewing young adults with life-limiting or life-threatening conditions in inclusive research. In: Hospice UK National Conference: Finding a Way Forward, 22-24 Nov 2022, Glasgow, UK.

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Earle, Sarah; Blackburn, Maddie; Lizzie, Chambers; Downing, Julia; Flemming, Kate; Hale, Jamie; Marston, Hannah; O'Dell, Lindsay; Sinason, Valerie; Watts, Lucy and Whitney, Sally (2021). ‘Exhausted, emotional, at breaking point’: The mental wellbeing of young adults with shortened lives. In: Hospice UK National Conference: A New World, 3-5 Nov 2021, Liverpool, UK.

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Earle, Sarah; Blackburn, Maddie; Lizzie, Chambers; Downing, Julia; Flemming, Kate; Hale, Jamie; Marston, Hannah; O'Dell, Lindsay; Sinason, Valerie; Watts, Lucy and Whitney, Sally (2021). 'I could almost just disappear, and would anyone really notice?' Precariousness and precarity when living with a life-limiting or life-threatening condition during the coronovirus (COVID-19) pandemic in the UK. In: European Sociological Association Conference: Sociological Knowledges for Alternative Futures, 31 Aug - 3 Sep 2021, Barcelona, Spain.

Blackburn, M.; Earle, S. and Komaromy, C. (2015). Relationships and sexuality in young adults with life-limiting conditions in England. In: Archives of Disease in Childhood, 100(Suppl3), article no. A89.

Blackburn, M. C.; Earle, S. and Komaromy, C. (2014). Sexuality, relationships and reproductive choices of young adults 16+ with life-limiting conditions in the UK: Choice or taboo? In: 2nd Congress on Paediatric Palliative Care - A global gathering, 19-21 Nov 2014, Rome, Omics Group.

Blackburn, Maddie; Earle, Sarah and Komaromy, Carol (2014). Relationships and sexuality in young adults with life-limiting conditions in England. In: BMJ Supportive & Palliative Care, 4(Suppl1), article no. A27.

Blackburn, Maddie; Earle, Sarah and Komaromy, Carol (2014). The sexuality of life-limited young(er) people in the UK. In: The 1st ICPCN Conference Mumbai, 2014, 10-12 Feb 2014, Mumbai, India.

Blackburn, M. C. (2019). Sexuality, Relationships and Reproductive Choices in Young Adults with Life-Limiting and/or Life-Threatening Conditions. PhD thesis The Open University.

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