Currently browsing: Items authored or edited by Elizabeth Tilley https://orcid.org/0000-0003-4665-394X

Jordan, J.; Larkin, M.; Tilley, E.; Vseteckova, J.; Ryan, S. and Wallace, L. (2025). Transitions‐Related Support for Ageing Family Carers of Older People With Intellectual Disabilities Who Convey Behaviours That Challenge Others: A Systematic Rapid Scoping Review. Journal of Applied Research in Intellectual Disabilities, 38(1), article no. e13322.

• Download Published Version (PDF / 1MB)

Grove, Nicola; Richards, Simon; Rice, Simon; Magwood, Claudia; Collis, Bryan; Martick, Steffen; Schuppener, Saskia; Kremsner, Gertraud; Tilley, Elizabeth and Walmsley, Jan (2024). Big ideas that changed the world of disability: Exploring theory with self‐advocates. British Journal of Learning Disabilities, 52(4) pp. 687–699.

• Download Published Version (PDF / 2MB)

Earle, Sarah; Ledger, Susan; Newton, Victoria; Rouse, Lorna and Tilley, Elizabeth (2024). Menstruation and learning disability across the life course: Using a two‐part scoping exercise to co‐produce research priorities. British Journal of Learning Disabilities, 52(3) pp. 524–537.

• Download Published Version (PDF / 2MB)

Ingham, Nigel; Walmsley, Jan and Tilley, Elizabeth (2024). "You just want to do what's right": Staff collusion in institutional abuse of people with learning disabilities. In: Punzi, Elisabeth and Steele, Linda eds. Sites of Conscience: Place, Memory, and the Project of Deinstitutionalization. Disability, Culture and Politics. Vancouver: UBC Press, pp. 231–250.

Mikulak, Magdalena; Ryan, Sara; Tilley, Elizabeth and Ledger, Susan (2024). Sticky Categories and Their Negative Consequences: People with Learning Disabilities and ‘Behaviours that Challenge Others'. Scandinavian Journal of Disability Research, 26(1) pp. 110–123.

• Download Published Version (PDF / 869kB)

Ryan, Sara; Wallace, Louise; Tilley, Elizabeth; Tuffrey-Wijne, Irene; Mikulak, Magdalena; Anderson, Rebecca; Vaid, Angeli; Bebbington, Pam; Keagan-Bull, Richard; Morrissey, Emmie and Martin, Angela (2024). Improving support and planning ahead for older people with learning disabilities and family carers: a mixed-methods study. Health and Social Care Delivery Research, 12(16)

• Download Published Version (PDF / 5MB)

Grove, Nicola; Richards, Simon; Rice, Ssimon; Magwood, Claudia; Collis, Bryan; Martick, Steffan; Schuppener, Saskia; Kremsner, Gertraud; Tilley, Elizabeth and Walmsley, Jan (2024). Big ideas that changed the world of disability: Exploring theory with self-advocates. British Journal of Learning Disabilities, 52(4) pp. 687–699.

• Download Published Version (PDF / 2MB)

Tilley, Elizabeth; Rouse, Lorna; Tuffrey-Wijne, Irene and Anderson-Kittow, Rebecca (2024). Reflections on an Evidence Review Process to Inform the Co-Design of a Toolkit for Supporting End-of-Life Care Planning With People With Intellectual Disabilities. Health Expectations, 27, article no. e70062.

• Download Published Version (PDF / 650kB)

Rouse, Lorna; Tilley, Elizabeth; Anderson-Kittow, Rebecca and Tuffrey-Wijne, Irene (2023). Inventorising existing approaches and resources for end of life care planning with people with intellectual disabilities: a scoping review. Palliative Medicine, 37(1) p. 162.

Ledger, Sue; Mccormack, Noelle; Walmsley, Jan; Tilley, Elizabeth and Davies, Ian (2022). “Everyone has a story to tell”: A review of life stories in learning disability research and practice. British Journal of Learning Disabilities, 50(4) pp. 484–493.

• Download Published Version (PDF / 313kB)

Tilley, Elizabeth and Jarrett, Simon (2022). The history of the history of learning disability. British Journal of Learning Disabilities, 50(2) pp. 132–142.

• Download Accepted Manuscript (PDF / 326kB)

Rouse, Lorna; Tilley, Elizabeth; Walmsley, Jan and Picken, Shaun (2022). Funding the Gap: A report on the funding of self-advocacy groups in 2021.

• Download Published Version (PDF / 2MB)
• Download Easy Read Version (PDF / 4MB)

Ledger, Susan June; Martin, Anne-Marie and Tilley, Elizabeth (2022). What's important to me? Using collaborative and creative approaches to shift the power in assessment. In: Atherton, Helen and Crickmore, Debbie eds. Intellectual Disabilities: Toward Inclusion (7th ed.). Elsevier, pp. 53–76.

Vseteckova, J.; Jordan, J.; Tilley, E.; Larkin, M.; Ryan, S. and Wallace, L. M. (2022). Transitions for older people with learning disabilities and behaviours that challenge others, and their family carers: a merged protocol for two rapid scoping reviews of evidence. Systematic Reviews, 11(1)

• Download Published Version (PDF / 1MB)

Bartlett, Terry; Charlesworth, Pat; Choksi, Ajay; Christian, Paul; Gentry, Susie; Green, Vicky; Grove, Nicola; Hart, Craig; Kwiatkowska, Gosia; Ledger, Sue; Murphy, Sharon; Tilley, Liz and Tokley, Kate (2022). Surviving through story: Experiences of people with learning disabilities in the covid19 pandemic 2020–2021. British Journal of Learning Disabilities, 50(2) pp. 270–286.

• Download Published Version (PDF / 6MB)

Davies, Ian; Iriate, Edurne Garcia; Jarrett, Simon; Johnson, Kelley; Stainton, Tim; Tilley, Liz and Walmsley, Jan (2022). Fifty years of the British journal of learning disabilities: The power of the past. British Journal of Learning Disabilities, 50(2) pp. 119–121.

Tilley, Elizabeth; Jordan, Joanne; Larkin, Mary; Vseteckova, Jitka; Ryan, Sara and Wallace, Louise (2022). Transitions for older people with intellectual disabilities and behaviours that challenge others: a rapid scoping review. Journal of Applied Research in Intellectual Disabilities, 36(2) pp. 207–229.

• Download Published Version (PDF / 2MB)

Tilley, Elizabeth; Christian, Paul; Ledger, Susan and Walmsley, Jan (2021). Madhouse: Reclaiming the History of Learning Difficulties through Acting and Activism. Journal of Literary & Cultural Disability Studies, 15(3) pp. 347–363.

• Download Accepted Manuscript (PDF / 517kB)

Tilley, Elizabeth; Strnadová, Iva; Ledger, Sue; Walmsley, Jan; Loblinzk, Julie; Christian, Paul Anthoney and Arnold, Zara Jane (2021). ‘Working together is like a partnership of entangled knowledge’: exploring the sensitivities of doing participatory data analysis with people with learning disabilities. International Journal of Social Research Methodology, 24(5) pp. 567–579.

• Download Accepted Manuscript (MS Word (2007+) / 75kB)
• Download Accepted Manuscript (PDF / 325kB)

Owens, Rebecca; Earle, Sarah; McNulty, Cliodna and Tilley, Elizabeth (2020). What works in community health education for adults with learning disabilities: A scoping review of the literature. Journal of Applied Research in Intellectual Disabilities, 33(6) pp. 1268–1283.

• Download Published Version (PDF / 773kB)

Rouse, Lorna; Tilley, Elizabeth; Walmsley, Jan and Picken, Shaun (2020). Filling in the Gaps: The role of self-advocacy groups in supporting the health and wellbeing of people with learning disabilities throughout the pandemic.

• Download Published Version (PDF / 1MB)

Tilley, Elizabeth; Strnadová, Iva; Danker, Joanne; Walmsley, Jan and Loblinzk, Julie (2020). The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature. Journal of Applied Research in Intellectual Disabilities, 33(6) pp. 1151–1165.

• Download Published Version (PDF / 580kB)

Earle, Sarah; Ledger, Sue; Tilley, Elizabeth; Walmsley, Jan; Chapman, Rohhss and Townson, Lou (2020). A critical reflection on accessing women with learning disabilities to participate in research about sensitive subjects through organisational partnerships. British Journal of Learning Disabilities, 48(2) pp. 162–169.

• Download Accepted Manuscript (PDF / 274kB)

Chalachanová, Anna; Nind, Melanie; Power, Andy; Tilley, Elizabeth; Walmsley, Jan; Westergård, Britt-Evy; Ostby, May; Heia, Torill; Magne Gerhardsen, Alf; Magnus Oterhals, Ole and King, Matthew (2020). Building Relationships in Inclusive Research in Diverse Contexts. Scandinavian Journal of Disability Research, 22(1) pp. 147–157.

• Download Published Version (PDF / 1MB)

Graham, Helen; Green, Victoria; Headon, Kassie; Ingham, Nigel; Ledger, Susan; Minnion, Andy; Richards, Rowena and Tilley, Elizabeth (2020). The public and the relational: The collaborative practices of the Inclusive Archive of Learning Disability History. In: Popple, Simon; Prescott, Andrew and Mutibwa, Daniel H. eds. Communities, Archives and New Collaborative Practices. Connected Communities. Bristol: Policy Press, pp. 219–234.

• Download Accepted Manuscript (PDF / 539kB)

Tilley, Elizabeth; Ledger, Susan and de Haas, Catherine (2020). Enabling people with profound and multiple learning disabilities to belong in public and community archive collections. In: Nind, Melanie and Strnadová, Iva eds. Belonging for People with Profound Intellectual and Multiple Disabilities: Pushing the Boundaries of Inclusion. London: Routledge, pp. 176–195.

• Download Accepted Manuscript (PDF / 380kB)

Mahon, Aoife; Pappas, Ioannis; Randhawa, Gurch; Tilley, Elizabeth and Vseteckova, Jitka (2019). Ageing carers and intellectual disability: a scoping review of literature. Quality in Ageing and Older Adults, 20(4) pp. 162–178.

• Download Accepted Manuscript (PDF / 284kB)

Mahon, A.; Vseteckova, J.; Tilley, E.; Pappas, Y. and Randhawa, G. (2019). A Systematic Scoping Review of the Interventions Available During Care Crises for People with Learning or Intellectual Disabilities (LD) who are Cared for by an Ageing Carer within the United Kingdom. Biomedical Journal of Scientific and Technical Research, 20(5) pp. 15389–15393.

• Download Published Version (PDF / 359kB)

Mahon, A; Vseteckova, Jitka; Tilley, Elizabeth; Pappas, Y and Randhawa, G (2019). Ageing carers and intellectual disability: a systematic scoping review of literature. Biomedical Journal of Scientific and Technical Research, 19(4) pp. 14473–14477.

• Download Published Version (PDF / 334kB)

Mahon, Aoife; Vseteckova, Jitka; Tilley, Elizabeth; Pappas, Yannis and Randhawa, Gurch (2019). Protocol: A systematic scoping review of the impact of mutual care on individuals with learning disabilities and their ageing carers in the United Kingdom. Biomedical Journal of Scientific and Technical Research, article no. BJSTR-CAR-19-RW-153.

• Download Published Version (PDF / 326kB)

Brownlee-Chapman, Chloe; Chapman, Rohhss; Eardley, Clarence; Foster, Sara; Green, Victoria; Graham, Helen; Harkness, Elizabeth; Headon, Kassie; Humphries, Pam; Ingham, Nigel; Ledger, Sue; May, Val; Minnion, Andy; Richards, Row; Tilley, Liz and Townson, Lou (2018). Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history. International Journal of Heritage Studies, 24(8) pp. 889–903.

• Download Accepted Manuscript (PDF / 564kB)

Vseteckova, Jitka; Tilley, Elizabeth; Mahon, Aoife; Pappas, Yannis and Randhawa, Gurch (2018). A systematic review of interventions available during care crises for individuals with learning disabilities (LD) who are cared for by an ageing carer within the United Kingdom.

Vseteckova, Jitka; Tilley, Elizabeth; Mahon, Aoife; Pappas, Yannis and Randhawa, Gurch (2018). A systematic review of interventions available during care crises for individuals with learning disabilities (LD) who are cared for by an ageing carer within the United Kingdom - protocol.

Walmsley, Jan; Tilley, Liz; Dumbleton, Sue and Bardsley, Janet (2017). The changing face of parent advocacy: a long view. Disability & Society, 32(9) pp. 1366–1386.

• Download Accepted Manuscript (PDF / 591kB)

Nind, Melanie; Seale, Jane; Chapman, Rohhss and Tilley, Liz (2016). The Conundrum of Training and Capacity Building for People with Learning Disabilities Doing Research. Journal of Applied Research in Intellectual Disabilities, 29(6) pp. 542–551.

• Download Published Version (PDF / 149kB)

Walmsley, Jan; Earle, Sarah; Tilley, Elizabeth; Ledger, Susan; Chapman, Rohss and Townson, Lou (2016). The experiences of women with learning disabilities on contraception choice. Primary Health Care, 26(9) pp. 28–32.

Ledger, Susan; Earle, Sarah; Tilley, Elizabeth and Walmsley, Jan (2016). Contraceptive decision-making and women with learning disabilities. Sexualities, 19(5-6) pp. 698–724.

• Download Accepted Manuscript (PDF / 227kB)

Walmsley, Jan; Earle, Sarah; Tilley, Elizabeth; Chapman, Rohhss; Ledger, Susan and Townson, Lou (2016). Contraceptive choices for women with learning disabilities. Learning Disability Practice, 19(2) pp. 32–34.

• Download Accepted Manuscript (PDF / 544kB)

Seale, Jane; Nind, Melanie; Tilley, Liz and Chapman, Rohhss (2015). Negotiating a third space for participatory research with people with learning disabilities: an examination of boundaries and spatial practices. The European Journal of Social Science Research, 28(4) pp. 483–497.

• Download Published Version (PDF / 479kB)

Tilley, Elizabeth (2013). Management, leadership and user control in self-advocacy: an English case study. Intellectual and Developmental Disabilities, 51(6) pp. 470–481.

• Download Accepted Manuscript (PDF / 151kB)

Tilley, Liz and Chapman, Rohhss (2013). Exploring the ethical underpinnings of self-advocacy support for intellectually disabled adults. Ethics and Social Welfare, 7(3) pp. 257–271.

• Download Accepted Manuscript (PDF / 140kB)

Marshall, Karrie and Tilley, Liz (2013). Life stories, intellectual disability, cultural heritage and ethics: dilemmas in researching and (re)presenting accounts from the Scottish Highlands. Ethics & Social Welfare, 7(4) pp. 400–409.

• Download Accepted Manuscript (PDF / 104kB)

Tilley, Elizabeth; Earle, Sarah and Walmsley, Jan (2012). International perspectives on the sterilization of women with intellectual disabilities. In: Earle, Sarah; Komaromy, Carol and Layne, Linda L. eds. Understanding Reproductive Loss: Perspectives on life, death and fertility. Farnham: Ashgate, pp. 23–36.

• Download Accepted Manuscript (PDF / 141kB)

Earle, Sarah; Tilley, Elizabeth and Walmsley, Jan (2012). Who makes crucial decisions on reproduction and contraception? Learning Disability Practice, 15(8) pp. 34–35.

Tilley, Elizabeth; Earle, Sarah; Walmsley, Jan and Atkinson, Dorothy (2012). ‘The Silence is roaring’: sterilization, reproductive rights and women with intellectual disabilities. Disability and Society, 27(3) pp. 413–426.

• Download Accepted Manuscript (PDF / 162kB)

Tilley, Elizabeth and Woodthorpe, Kate (2011). Is it the end for anonymity as we know it? A critical examination of the ethical principle of anonymity in the context of 21st century demands on the qualitative researcher. Qualitative Research, 11(2) pp. 197–212.

• Download Accepted Manuscript (PDF / 175kB)

Tilley, Elizabeth and Graham, Helen (2010). Histories of Institutional Change, Choice and Money (Special Issue of the British Journal of Learning Disabilities).

Tilley, Elizabeth Kate (2007). Advocacy for People with Learning Difficulties: The Role of Two Organisations. PhD thesis The Open University.

• Download Final Version (PDF / 27MB)

Tilley, Liz (2006). The Voluntary Sector. In: Welshman, John and Walmsley, Jan eds. Community Care in Perspective: Care, Control and Citizenship. Basingstoke, UK: Palgrave Macmillan, pp. 219–232.

Tilley, Liz (2006). Resistance in Mencap's History. In: Mitchell, Duncan; Traustadottir, Rannveig; Chapman, Rohhss; Townson, Louise; Ingham, Nigel and Ledger, Sue eds. Exploring Experiences of Advocacy by People with Learning Disabilities: Testimonies of Resistance. London, UK: Jessica Kingsley Publishers, pp. 128–141.