A Systematic Scoping Review of the Interventions Available During Care Crises for People with Learning or Intellectual Disabilities (LD) who are Cared for by an Ageing Carer within the United Kingdom.

Mahon, A.; Vseteckova, J.; Tilley, E.; Pappas, Y. and Randhawa, G. (2019). A Systematic Scoping Review of the Interventions Available During Care Crises for People with Learning or Intellectual Disabilities (LD) who are Cared for by an Ageing Carer within the United Kingdom. Biomedical Journal of Scientific and Technical Research, 20(5) pp. 15389–15393.

DOI: https://doi.org/10.26717/BJSTR.2019.20.003512

Abstract

The majority of individuals with learning disabilities within the United Kingdom (UK) are cared for by a family member, usually a parent. However, individuals with learning disabilities in the UK are now living longer than ever before [1] which means that the number of ageing family members providing care is also increasing. Furthermore, an increasing number of individuals with LD are now also outliving their parents [2]. Despite this, many adults with LD and their ageing carers do not make plans for their future [2], including periods of care crisis such as the serious illness or death of their ageing primary care provider.

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