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Blackburn, Maddie; Chambers, Lizzie and Earle, Sarah
(2017).
DOI: https://doi.org/10.1111/jan.13089
Abstract
Publication of Sexuality Standards and Guidance for nurses and other health and social care professionals working with life-limited young adults, care staff and their families (December 2015 and July 2016).
In 2013, The Open University Sexuality Alliance was established. This is a collaborative partnership which brings together young people and adults with Life-threatening and life-limiting conditions (LLTCs), representatives from the public and third sector, policy makers, doctors, lawyers, academics and nurses with particular expertise in addressing the sexuality of young people with an uncertain life-course. In partnership with Together for Short Lives, the UK charity for children and young people with LLTCs, the Alliance brought together a range of individuals and organisations, including Family Planning Association and Action Duchenne (the full membership is provided in Appendix 1). The primary focus for the Alliance was to develop Sexuality Guidance and Standards. These were published in December 2015 and a second edition is currently in press. The Sexuality Guidance provides important information about sex and sexuality for health, education and social care staff working with young people with LLTCs. The need for the Sexuality Guidance and Standards for people with LLTCs has been recognized by young people themselves, and practitioners in health, social care and education settings across the public and third sectors, particularly nurses.