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Carter, B.; Satchwell, C.; Simons, J. and Bray, L.
(2014).
DOI: https://doi.org/10.1136/archdischild-2014-307384.203
URL: http://www2.kenes.com/eaps/pages/home.aspx
Abstract
Background and aim Although many studies still either do not
engage service users or only do so in a tokenistic way, service
user engagement is now seen as best practice within research
design. Not only is it respectful to engage service users, but it
can also identify potential barriers, explore solutions and generate
more robust research. In this paper we explore our experience
of working with child service users as we developed a study
exploring children’s pain literacy.
Methods Using Appreciative Inquiry we worked with 38 children (5–17 years) in schools, hospitals and home settings. During
our consultations with the children we explored the feasibility of the methods we were considering for data collection, asked them for suggestions of alternative approaches and explored core aspects of the observation element.
Results The children enjoyed the use of the collage-based data
generation activities we planned. In response to our questions
about whether they thought other children would feel safe
talking about their pain; they felt that such would work best on
a one-to-one basis or in small groups. They provided feedback
on where we should position ourselves in ward settings whilst
undertaking non-participant observation of children during the
post-operative period. They made practical suggestions about
how children could assent and withdraw from the study.
Conclusions From our experience our consultations were invaluable
and worth the effort; our final design was more robust and
grounded in the children’s realities.
CORE (COnnecting REpositories)
CORE (COnnecting REpositories)
