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Higham, Sue
(2009).
DOI: https://doi.org/10.1111/j.1365-2702.2009.02920.x
Abstract
When the prevalence of childhood chronic illness is increasing as a result of medical progress leading to improved survival, it is vital that health care professionals understand parents’ experiences if they are to support both parents and children and work in partnership with them. Previous research with parents of children with chronic illness has explored: maintaining normality (Deatrick et al. 1999); sources of stress for parents and parents’ adjustment (Aldridge 2008); coping (Atkin & Ahmad 1999) and the effects of parental education and knowledge concerning the illness on child well-being and disease management (MacDonald et al. 2008). In this study, Swallow (2008) examined parents’ views of their identity during the period when they were acquiring clinical skills for the management of chronic kidney disease. Data were collected through a sequence of 3–4 semi-structured interviews with parents during the 18 months following their child’s diagnosis.