Currently browsing: Items authored or edited by Elizabeth Tilley https://orcid.org/0000-0003-4665-394X

Tilley, Elizabeth; Strnadová, Iva; Ledger, Sue; Walmsley, Jan; Loblinzk, Julie; Christian, Paul Anthoney and Arnold, Zara Jane (2021). ‘Working together is like a partnership of entangled knowledge’: exploring the sensitivities of doing participatory data analysis with people with learning disabilities. International Journal of Social Research Methodology (Early Access).

• Request a copy from the authorAccepted Manuscript (PDF)
  This file is not available for public download until 6 July 2022

Tilley, Elizabeth; Ledger, Susan and de Haas, Catherine (2020). Enabling people with profound and multiple learning disabilities to belong in public and community archive collections. In: Nind, Melanie and Strnadová, Iva eds. Belonging for People with Profound Intellectual and Multiple Disabilities: Pushing the Boundaries of Inclusion. London: Routledge, pp. 176–195.

• Request a copy from the authorAccepted Manuscript (PDF)
  This file is not available for public download until 20 November 2021

Chalachanová, Anna; Nind, Melanie; Power, Andy; Tilley, Elizabeth; Walmsley, Jan; Westergård, Britt-Evy; Ostby, May; Heia, Torill; Magne Gerhardsen, Alf; Magnus Oterhals, Ole and King, Matthew (2020). Building Relationships in Inclusive Research in Diverse Contexts. Scandinavian Journal of Disability Research, 22(1) pp. 147–157.

• Download Version of Record (PDF / 1MB)

Tilley, Elizabeth; Ledger, Susan; Graham, Helen; Ingham, Nigel; Minnion, Andy; Green, Victoria; Headon, Kassie and Richards, Rowena (2020). The public and the relational: The collaborative practices of the Inclusive Archive of Learning Disability History. In: Popple, Simon; Prescott, Andrew and Mutibwa, Daniel eds. Communities, Archives and New Collaborative Practices. Connected Communities. Bristol: Policy Press, pp. 219–234.

Tilley, Elizabeth; Strnadová, Iva; Danker, Joanne; Walmsley, Jan and Loblinzk, Julie (2020). The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature. Journal of Applied Research in Intellectual Disabilities (Early Access).

• Download Version of Record (PDF / 628kB)

Earle, Sarah; Ledger, Sue; Tilley, Elizabeth; Walmsley, Jan; Chapman, Rohhss and Townson, Lou (2020). A critical reflection on accessing women with learning disabilities to participate in research about sensitive subjects through organisational partnerships. British Journal of Learning Disabilities (Early Access).

• Request a copy from the authorAccepted Manuscript (PDF)
  This file is not available for public download until 16 February 2022

Owens, Rebecca; Earle, Sarah; McNulty, Cliodna and Tilley, Elizabeth (2020). What works in community health education for adults with learning disabilities: A scoping review of the literature. Journal of Applied Research in Intellectual Disabilities (Early Access).

• Download Version of Record (PDF / 819kB)

Mahon, A.; Vseteckova, J.; Tilley, E.; Pappas, Y. and Randhawa, G. (2019). A Systematic Scoping Review of the Interventions Available During Care Crises for People with Learning or Intellectual Disabilities (LD) who are Cared for by an Ageing Carer within the United Kingdom. Biomedical Journal of Scientific and Technical Research, 20(5) pp. 15389–15393.

• Download Version of Record (PDF / 359kB)

Mahon, Aoife; Pappas, Ioannis; Randhawa, Gurch; Tilley, Elizabeth and Vseteckova, Jitka (2019). Ageing carers and intellectual disability: a scoping review of literature. Quality in Ageing and Older Adults (Early Access).

• Download Accepted Manuscript (PDF / 284kB)

Mahon, A; Vseteckova, Jitka; Tilley, Elizabeth; Pappas, Y and Randhawa, G (2019). Ageing carers and intellectual disability: a systematic scoping review of literature. Biomedical Journal of Scientific and Technical Research, 19(4) pp. 14473–14477.

• Download Version of Record (PDF / 334kB)

Mahon, Aoife; Vseteckova, Jitka; Tilley, Elizabeth; Pappas, Yannis and Randhawa, Gurch (2019). Protocol: A systematic scoping review of the impact of mutual care on individuals with learning disabilities and their ageing carers in the United Kingdom. Biomedical Journal of Scientific and Technical Research, article no. BJSTR-CAR-19-RW-153.

• Download Version of Record (PDF / 326kB)

Brownlee-Chapman, Chloe; Chapman, Rohhss; Eardley, Clarence; Foster, Sara; Green, Victoria; Graham, Helen; Harkness, Elizabeth; Headon, Kassie; Humphries, Pam; Ingham, Nigel; Ledger, Sue; May, Val; Minnion, Andy; Richards, Row; Tilley, Liz and Townson, Lou (2018). Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history. International Journal of Heritage Studies, 24(8) pp. 889–903.

• Download Accepted Manuscript (PDF / 564kB)

Vseteckova, Jitka; Tilley, Elizabeth; Mahon, Aoife; Pappas, Yannis and Randhawa, Gurch (2018). A systematic review of interventions available during care crises for individuals with learning disabilities (LD) who are cared for by an ageing carer within the United Kingdom. PROSPERO International prospective register of systematic reviews, National Institute of Health Research.

Vseteckova, Jitka; Tilley, Elizabeth; Mahon, Aoife; Pappas, Yannis and Randhawa, Gurch (2018). A systematic review of interventions available during care crises for individuals with learning disabilities (LD) who are cared for by an ageing carer within the United Kingdom - protocol. PROSPERO CRD42018117604.

Walmsley, Jan; Tilley, Liz; Dumbleton, Sue and Bardsley, Janet (2017). The changing face of parent advocacy: a long view. Disability & Society, 32(9) pp. 1366–1386.

• Download Accepted Manuscript (PDF / 591kB)

Nind, Melanie; Seale, Jane; Chapman, Rohhss and Tilley, Liz (2016). The Conundrum of Training and Capacity Building for People with Learning Disabilities Doing Research. Journal of Applied Research in Intellectual Disabilities, 29(6) pp. 542–551.

• Download Version of Record (PDF / 149kB)

Walmsley, Jan; Earle, Sarah; Tilley, Elizabeth; Ledger, Susan; Chapman, Rohss and Townson, Lou (2016). The experiences of women with learning disabilities on contraception choice. Primary Health Care, 26(9) pp. 28–32.

Ledger, Susan; Earle, Sarah; Tilley, Elizabeth and Walmsley, Jan (2016). Contraceptive decision-making and women with learning disabilities. Sexualities, 19(5-6) pp. 698–724.

• Download Accepted Manuscript (PDF / 227kB)

Walmsley, Jan; Earle, Sarah; Tilley, Elizabeth; Chapman, Rohhss; Ledger, Susan and Townson, Lou (2016). Contraceptive choices for women with learning disabilities. Learning Disability Practice, 19(2) pp. 32–34.

• Download Accepted Manuscript (PDF / 544kB)

Seale, Jane; Nind, Melanie; Tilley, Liz and Chapman, Rohhss (2015). Negotiating a third space for participatory research with people with learning disabilities: an examination of boundaries and spatial practices. The European Journal of Social Science Research, 28(4) pp. 483–497.

• Download Version of Record (PDF / 479kB)

Tilley, Elizabeth (2013). Management, leadership and user control in self-advocacy: an English case study. Intellectual and Developmental Disabilities, 51(6) pp. 470–481.

• Download Accepted Manuscript (PDF / 151kB)

Tilley, Liz and Chapman, Rohhss (2013). Exploring the ethical underpinnings of self-advocacy support for intellectually disabled adults. Ethics and Social Welfare, 7(3) pp. 257–271.

• Download Accepted Manuscript (PDF / 140kB)

Marshall, Karrie and Tilley, Liz (2013). Life stories, intellectual disability, cultural heritage and ethics: dilemmas in researching and (re)presenting accounts from the Scottish Highlands. Ethics & Social Welfare, 7(4) pp. 400–409.

• Download Accepted Manuscript (PDF / 104kB)

Tilley, Elizabeth; Earle, Sarah and Walmsley, Jan (2012). International perspectives on the sterilization of women with intellectual disabilities. In: Earle, Sarah; Komaromy, Carol and Layne, Linda L. eds. Understanding Reproductive Loss: Perspectives on life, death and fertility. Farnham: Ashgate, pp. 23–36.

• Request a copy from the authorAccepted Manuscript (PDF)
  This file is not available for public download

Earle, Sarah; Tilley, Elizabeth and Walmsley, Jan (2012). Who makes crucial decisions on reproduction and contraception? Learning Disability Practice, 15(8) pp. 34–35.

Tilley, Elizabeth; Earle, Sarah; Walmsley, Jan and Atkinson, Dorothy (2012). ‘The Silence is roaring’: sterilization, reproductive rights and women with intellectual disabilities. Disability and Society, 27(3) pp. 413–426.

• Download Accepted Manuscript (PDF / 162kB)

Tilley, Elizabeth and Woodthorpe, Kate (2011). Is it the end for anonymity as we know it? A critical examination of the ethical principle of anonymity in the context of 21st century demands on the qualitative researcher. Qualitative Research, 11(2) pp. 197–212.

• Download Accepted Manuscript (PDF / 175kB)

Tilley, Elizabeth and Graham, Helen (2010). Histories of Institutional Change, Choice and Money (Special Issue of the British Journal of Learning Disabilities). Wiley-Blackwell, Oxford, UK.

Tilley, Elizabeth Kate (2007). Advocacy for People with Learning Difficulties: The Role of Two Organisations. PhD thesis The Open University.

• Download Version of Record (PDF / 27MB)

Tilley, Liz (2006). The Voluntary Sector. In: Welshman, John and Walmsley, Jan eds. Community Care in Perspective: Care, Control and Citizenship. Basingstoke, UK: Palgrave Macmillan, pp. 219–232.

Tilley, Liz (2006). Resistance in Mencap's History. In: Mitchell, Duncan; Traustadottir, Rannveig; Chapman, Rohhss; Townson, Louise; Ingham, Nigel and Ledger, Sue eds. Exploring Experiences of Advocacy by People with Learning Disabilities: Testimonies of Resistance. London, UK: Jessica Kingsley Publishers, pp. 128–141.