Co-Designing Personal Health? Multidisciplinary Benefits and Challenges in Informing Diabetes Self-Care Technologies

Ayobi, Amid; Stawarz, Katarzyna; Katz, Dmitri; Marshall, Paul; Yamagata, Taku; Santos-Rodriguez, Raul; Flach, Peter and O'Kane, Aisling Ann (2021). Co-Designing Personal Health? Multidisciplinary Benefits and Challenges in Informing Diabetes Self-Care Technologies. Proceedings of the ACM on Human-Computer Interaction, 5(CSCW2) pp. 1–26.

DOI: https://doi.org/10.1145/3479601

Abstract

Co-design is a widely applied design process with well-documented values, including mutual learning and collective creativity. However, the real-world challenges of conducting multidisciplinary co-design research to inform the design of self-care technologies are not well established. We provide a qualitative account of a multidisciplinary project that aimed to co-design machine learning applications for Type 1 Diabetes (T1D) self-management. Through interviews, we identify not only perceived social, technological and strategic benefits of co-design but also organisational, translational and pragmatic design challenges: participants with T1D experienced difficulties in co-designing systems that met their individual self-care needs as part of group activities; HCI and AI researchers described challenges resulting from applying co-design outcomes to data-driven ML work; and industry collaborators highlighted academic data sharing regulations as cross-organisational challenges that can impede co-design efforts. Based on this understanding, we discuss opportunities for supporting multidisciplinary collaborations and aligning individual health needs with collaborative co-design activities.

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