Challenges for palliative care day services: a focus group study

Hasson, Felicity; Jordan, Joanne; McKibben, Laurie; Graham-Wisener, Lisa; Finucane, Anne; Lamour, Kathy; Zafar, Shazia; Hewison, Alistair; Brazil, Kevin and Kernohan, George (2021). Challenges for palliative care day services: a focus group study. BMC Palliative Care, 20(11)

DOI: https://doi.org/10.1186/s12904-020-00699-7

Abstract

Background: Palliative care day services provide a safe environment for people with palliative care needs, enabling them to access a range of services while acting as a respite services for family caregivers. Viewed as marginal services, they are often under resourced and under researched. The aim of this study was to understand how palliative day care services contribute to client care from the perspective of management and hospice multidisciplinary teams.

Methods: A descriptive qualitative study, using six focus groups conducted with staff at three United Kingdom hospices in England, Scotland and Northern Ireland. Thirty-five participants were recruited, including management and staff. Discussions were transcribed and analysed thematically.

Results: Four key themes emerged: (1) variations of care, beyond heterogeneity of patients; (2) unclear referrals and inconsistent patient population; (3) recognising strengths and challenges and (4) an uncertain future. A major focus of group discussions was the model of care and the benefits of the service, however the importance of demonstrating services’ effectiveness and value for money was highlighted.

Conclusions: Management and hospice staff believed day-services to be a helpful introduction to palliative care, providing both social and medical support. Economic pressures and patient demand were influencing them to move from a social model to a hybrid model. Further research is needed to understand the effectiveness of the service.

Viewing alternatives

Download history

Metrics

Public Attention

Altmetrics from Altmetric

Number of Citations

Citations from Dimensions

Item Actions

Export

About

  • Item ORO ID
  • 74857
  • Item Type
  • Journal Item
  • ISSN
  • 1472-684X
  • Project Funding Details
  • Funded Project NameProject IDFunding Body
    Evaluation of the costs and effects of palliative care day services on patient quality of life and well-beingC38861/A17114Marie Curie UK
  • Keywords
  • Palliative care; Hospice program; Day care; Qualitative research
  • Academic Unit or School
  • Faculty of Wellbeing, Education and Language Studies (WELS)
  • Research Group
  • Health and Wellbeing PRA (Priority Research Area)
  • Copyright Holders
  • © 2021 Felicity Hasson, © 2021 Joanne Jordan, © 2021 Laurie McKibben, © 2021 Lisa Graham-Wisener, © 2021 Anne Finucane, © 2021 Kathy Armour, © 2021 Shazia Zafar, © 2021 Alistair Hewison, © 2021 Kevin Brazil, © 2021 W. George Kernohan
  • Depositing User
  • Joanne Jordan

Recommendations