The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature

Tilley, Elizabeth; Strnadová, Iva; Danker, Joanne; Walmsley, Jan and Loblinzk, Julie (2020). The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature. Journal of Applied Research in Intellectual Disabilities (Early Access).

DOI: https://doi.org/10.1111/jar.12752

Abstract

Background: A high sense of subjective well‐being has been associated with more prosocial behaviours, better health, work productivity and positive relationships. The aim of this systematic review was to explore what impact self‐advocacy has on the subjective well‐being of people with intellectual disabilities.
Method: The authors reviewed articles focusing on the perspectives of adults with intellectual disabilities engaged with self‐advocacy groups. Searches were performed in PsychINFO, Web of Science, SCOPUS, MEDLINE and CIHNL databases, resulting in 16 articles meeting the inclusion criteria. A framework synthesis approach was used to extract data deductively based on the Dynamic Model of Wellbeing.
Results: While self‐advocacy has a positive impact on all domains of the Dynamic Model of Wellbeing, negative impacts associated with participation in a self‐advocacy group were also reported.
Conclusions: The benefits of participating in self‐advocacy groups on the well‐being of individuals with intellectual disabilities outweigh the disadvantages.

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