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Young adults with life-limiting or life-threatening conditions: sexuality and relationships support

Earle, Sarah and Blackburn, Maddie (2020). Young adults with life-limiting or life-threatening conditions: sexuality and relationships support. BMJ Supportive & Palliative Care (Early access).

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URL: https://spcare.bmj.com/content/early/2020/04/02/bm...
DOI (Digital Object Identifier) Link: https://doi.org/10.1136/bmjspcare-2019-002070
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Abstract

Objective The research project addressed the need to support young adults with issues relating to sexuality and relationships though the development of guidance and standards for practice.

Methods An action research project underpinned by an interpretivist qualitative framework. Participants were recruited to the project via three hospices in the UK. Data from four focus groups were analysed thematically using a process of constant comparison.

Results Sixteen young adults with life-limiting or life-threatening conditions aged 21–33 years participated in the study. Three significant themes were identified: sexuality and the transition to adulthood, recognising the significance of sex and relationships, and realising sexual rights.

Conclusion Sexuality and relationships play an important role in the transition to adulthood for people with life-limiting or life-threatening conditions living in the UK. While young adults with these conditions may have considerable support needs, it is important to balance this with the freedom to exercise choice and to make independent decisions. Sex negativity can have an adverse impact on the experiences of young adults and creates barriers. Improved ongoing access to sex education and the provision of enabling environments that afford privacy and safety are important to support young adults with sexuality and relationships.

Item Type: Journal Item
Copyright Holders: 2020 The Authors
Keywords: sexuality; relationships; young people; life-limiting conditions; life-threatening conditions; disability;
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Research Group: Health and Wellbeing PRA (Priority Research Area)
Item ID: 70021
Depositing User: Sarah Earle
Date Deposited: 03 Apr 2020 13:58
Last Modified: 09 May 2020 21:54
URI: http://oro.open.ac.uk/id/eprint/70021
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