How does involvement of a hospice nurse specialist impact on the experience on informal caring in palliative care? Perspectives of middle‐aged partners bereaved through cancer

Borland, R.; Glackin, M. and Jordan, J. (2014). How does involvement of a hospice nurse specialist impact on the experience on informal caring in palliative care? Perspectives of middle‐aged partners bereaved through cancer. European Journal of Cancer Care, 23(5) pp. 701–711.

DOI: https://doi.org/10.1111/ecc.12183

Abstract

The aim of this study was to retrospectively explore partners' understandings and experiences in relation to caring for a loved one with a terminal illness, with a particular focus on the role of the hospice nurse specialist (HNS). Participants were purposively sampled and recruited through HNS gatekeepers. Seven middle‐aged, bereaved partners participated in semi‐structured, qualitative interviews. The interviews were audio recorded and transcribed verbatim and data were analysed using thematic content analysis. Five main themes emerged regarding the impact of the HNS on informal caring: ‘the ambivalence of caring’, ‘the HNS as a “confidante” in caring’, ‘the HNS as a “champion” in support’, ‘the work of the HNS – an unseen benefit’ and ‘being prepared for death and bereavement’. Findings from this study offer new insights into how involvement of a HNS impacts on the ability of carers to perform their role as an informal caregiver. Results highlight a crucial need for carers to have a clear understanding of all aspects of the HNS role so that full benefit is derived from their input. Recruitment of experienced and knowledgeable nurses is paramount, but equally important for carers is the supportive aspect of the role for which nurses need to demonstrate excellent communication skills and an intuitive, caring approach.

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About

  • Item ORO ID
  • 59075
  • Item Type
  • Journal Item
  • ISSN
  • 0961-5423
  • Project Funding Details
  • Funded Project NameProject IDFunding Body
    Not SetNot SetNorthern Ireland Research and Development Office
  • Keywords
  • bereavement; carers; hospice nurse specialist; supportive care
  • Academic Unit or School
  • Faculty of Wellbeing, Education and Language Studies (WELS)
  • Copyright Holders
  • © 2014 John Wiley and Son Limited.
  • Depositing User
  • Joanne Jordan

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