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Personal information documents for people with dementia: healthcare staff’s perceptions and experiences

Baillie, Lesley and Thomas, Nicola (2018). Personal information documents for people with dementia: healthcare staff’s perceptions and experiences. Dementia (Early Access).

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DOI (Digital Object Identifier) Link: https://doi.org/10.1177/1471301218778907
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Abstract

Person-centred care is internationally recognised as best practice for the care of people with dementia. Personal information documents for people with dementia are proposed as a way to support person-centred care in healthcare settings. However, there is little research about how they are used in practice. The aim of this study was to analyse healthcare staff’s perceptions and experiences of using personal information documents, mainly Alzheimer’s Society’s ‘This is me’, for people with dementia in healthcare settings. The method comprised a secondary thematic analysis of data from a qualitative study, of how a dementia awareness initiative affected care for people with dementia in one healthcare organisation. The data were collected through 12 focus groups (n=58 participants) and 1 individual interview, conducted with a range of healthcare staff, both clinical and non-clinical. There are four themes presented: Understanding the rationale for personal information documents; Completing personal information documents; Location for personal information documents and transfer between settings; Impact of personal information documents in practice. The findings illuminated how healthcare staff use personal information documents in practice in ways that support person-centred care. Practical issues about the use of personal information documents were revealed and these may affect the optimal use of the documents in practice. The study indicated the need to complete personal information documents at an early stage following diagnosis of dementia, and the importance of embedding their use across care settings, to support communication and integrated care.

Item Type: Journal Item
Copyright Holders: 2018 The Authors
ISSN: 1741-2684
Project Funding Details:
Funded Project NameProject IDFunding Body
Barbara’s Story: Development and Evaluation of a Programme to Reinforce Values Based BehaviourNot SetBurdett Trust Burdett Trust for Nursing
Keywords: dementia; person-centred care; personal information documents; communication; healthcare; care transitions
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care > Nursing
Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Item ID: 54914
Depositing User: Lesley Baillie
Date Deposited: 01 May 2018 08:54
Last Modified: 22 Nov 2019 13:54
URI: http://oro.open.ac.uk/id/eprint/54914
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