The Open UniversitySkip to content
 

Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history

Brownlee-Chapman, Chloe; Chapman, Rohhss; Eardley, Clarence; Foster, Sara; Green, Victoria; Graham, Helen; Harkness, Elizabeth; Headon, Kassie; Humphries, Pam; Ingham, Nigel; Ledger, Sue; May, Val; Minnion, Andy; Richards, Row; Tilley, Liz and Townson, Lou (2018). Between speaking out in public and being person-centred: collaboratively designing an inclusive archive of learning disability history. International Journal of Heritage Studies, 24(8) pp. 889–903.

Full text available as:
[img]
Preview
PDF (Accepted Manuscript) - Requires a PDF viewer such as GSview, Xpdf or Adobe Acrobat Reader
Download (564kB) | Preview
DOI (Digital Object Identifier) Link: https://doi.org/10.1080/13527258.2017.1378901
Google Scholar: Look up in Google Scholar

Abstract

The Living Archive of Learning Disability History is being developed by an inclusive team of researchers both with and without learning disabilities. We argue the archive is important in making publicly visible the lives of people with learning disabilities. Yet – drawing on thinking that came out of our collaborative workshops – we also identify alternative imperatives, that you might want to have control over how you share your personal memories and stories, with whom, when you share them and for how long. We show how we are responding to these different ideas in the design of the Living Archive in order to create pathways between two traditions that have emerged through self-advocacy: ‘speaking out in public’ and ‘being person-centred’. We outline our research on consent processes to ensure that our archive builds capacity for as many people as possible to consent while also offering a legally compliant ‘Best Interests’ process in line with the requirements of the Mental Capacity Act, England and Wales (2005). We argue that deploying and actively navigating between the different political logics of ‘speaking out in public’ and ‘being person-centred’ offers a way forward for ongoing debates concerning community engagement in archives, museums and heritage.

Item Type: Journal Item
Copyright Holders: 2017 The Authors
ISSN: 1470-3610
Project Funding Details:
Funded Project NameProject IDFunding Body
Developing a co-produced, digital, and living archive of learning disability history: An exploration of ethics, ownership and new connectivities (K-12-021-ET)AH/K007459/1AHRC (Arts & Humanities Research Council)
Keywords: heritage; archive; learning disability; mental capacity act; informed consent
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care > Health and Social Care
Item ID: 53434
Depositing User: Elizabeth Tilley
Date Deposited: 13 Feb 2018 11:56
Last Modified: 11 Jun 2019 11:45
URI: http://oro.open.ac.uk/id/eprint/53434
Share this page:

Metrics

Altmetrics from Altmetric

Citations from Dimensions

Download history for this item

These details should be considered as only a guide to the number of downloads performed manually. Algorithmic methods have been applied in an attempt to remove automated downloads from the displayed statistics but no guarantee can be made as to the accuracy of the figures.

Actions (login may be required)

Policies | Disclaimer

© The Open University   contact the OU