The Open UniversitySkip to content

Carer Research and Knowledge Scoping Review

Larkin, Mary (2017). Carer Research and Knowledge Scoping Review. In: NIHR School for Social Care Conference 2017, 12 Apr 2017, LSE, London, UK.

Full text available as:
PDF (Supplementary Material) - Requires a PDF viewer such as GSview, Xpdf or Adobe Acrobat Reader
Download (742kB) | Preview
Google Scholar: Look up in Google Scholar


There now a wealth of national and international evidence and knowledge about carers but it is currently highly fragmented and disparate. As a result it lacks accessibility, utility and coherence which significantly impedes its capacity to both inform research and practice and to generate new knowledge. This paper offers findings from an innovative and timely comprehensive scoping review of carer-related knowledge which will make a significant contribution to addressing this deficit. The review has two complementary purposes. It provides, for the first time, an academically robust and detailed mapping of carer-related evidence and knowledge and underpins a fully accessible web-based resource developed in partnership with, and hosted by, the Social Care Institute for Excellence (SCIE). This resource will form part of SCIE’s suite of resources to support the implementation of the Care Act 2014.

The paper will outline the way that Arksey and O’Malley (2005) framework for scoping studies guided the methodological approach to this unique scoping review. The key findings about the nature of carer-related knowledge will also be discussed. This will include a description of the major themes identified, their frequencies and how these were organised into four main categories - Carer Variables, Type of Care, Impact of Care Support and Carers. These themes and categories were built into a representational ‘map’ of existing carer-related knowledge. This map will be presented together with an analysis of the gaps in knowledge that emerged, and reflections on those areas that are well researched, and those others that remain less travelled. At the end of the paper, an overview of the digital resource SCIE is developing for launch in 2017 and an outline of dissemination and impact plans will be provided.

Reference Arksey H. and O’Malley, L. (2005) ‘Scoping Studies: Towards a Methodological Framework.’ International Journal of Social Research Methodology, 8, 19-32

Item Type: Conference or Workshop Item
Project Funding Details:
Funded Project NameProject IDFunding Body
Not SetNot SetSSCR NIHR School for Social Care Research
Keywords: Carers; carer research; scoping review; the nature of knowledge about carers
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care > Health and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Research Group: Health and Wellbeing PRA (Priority Research Area)
Item ID: 49212
Depositing User: Mary Larkin
Date Deposited: 27 Apr 2017 12:16
Last Modified: 10 Dec 2018 00:47
Share this page:

Download history for this item

These details should be considered as only a guide to the number of downloads performed manually. Algorithmic methods have been applied in an attempt to remove automated downloads from the displayed statistics but no guarantee can be made as to the accuracy of the figures.

Actions (login may be required)

Policies | Disclaimer

© The Open University   contact the OU