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End of life care: A scoping review of experiences of Advance Care Planning for people with dementia

Jones, Kerry; Birchley, Giles; Huxtable, Richard; Clare, Linda; Walter, Tony and Dixon, Jeremy (2019). End of life care: A scoping review of experiences of Advance Care Planning for people with dementia. Dementia, 18(3) pp. 825–845.

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DOI (Digital Object Identifier) Link: https://doi.org/10.1177/1471301216676121
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Abstract

Despite increasing attention given to dementia by international governments and policy makers the focus of end of life care has been on the dying trajectory of malignant disease. People with severe dementia have complex physical and psychological needs, yet, the disease is not always recognised as terminal. Advance care planning involving people with dementia and their families can provide opportunities to discuss and later, initiate timely palliative care.

We conducted a scoping review of studies exploring decisions associated with the EoLC of people with dementia. Eligible studies had to report on decision making at the end of life and by whom (the dying person, clinician/health professional or relative/family member).

Twenty five eligible studies reported on advance care planning and end of life care decisions for individuals with dementia. The papers highlight several challenges that need to be addressed in order to provide adequate and effective care for people with dementia as they near the end of their life.

Item Type: Journal Item
Copyright Holders: 2016 The Authors
ISSN: 1471-3012
Project Funding Details:
Funded Project NameProject IDFunding Body
Death and DyingNot SetGW4
Keywords: dementia; end-of-life care; advance care planning; decision-making; death; dying
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care > Health and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Item ID: 47510
Depositing User: Kerry Jones
Date Deposited: 05 Oct 2016 15:33
Last Modified: 16 Nov 2019 01:23
URI: http://oro.open.ac.uk/id/eprint/47510
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