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Planning for an (un)certain future: Choice within English end-of-life care

Borgstrom, Erica (2015). Planning for an (un)certain future: Choice within English end-of-life care. Current Sociology, 63(5) pp. 700–713.

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URL: http://csi.sagepub.com/content/63/5/700
DOI (Digital Object Identifier) Link: https://doi.org/10.1177/0011392115590084
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Abstract

Neoliberal policies are shaping the healthcare landscape by emphasizing individual choice. End-of-life care is a case in point as patient choice, through advance care planning, is a key conceptual framework for motivating service development and provision. Based on qualitative ethnographic research in England, this article describes what choice is and how it is enacted in the context of end-of-life care. Within policy, choice represents individual autonomy and is a goal to strive towards. In order to enable choice, healthcare professionals are to openly discuss dying with patients and in turn, patients are expected to express their preferences. However, by focusing on two case studies, the article demonstrates how people struggle to articulate choice in these ways and the preferences expressed represent the complex contexts in which care is performed. Although death is certain, the possibility of control alluded to by choice rhetoric is not realized in practice.

Item Type: Journal Item
Copyright Holders: 2015 The Author
ISSN: 1461-7064
Project Funding Details:
Funded Project NameProject IDFunding Body
PhD StudentshipNot SetNIHR ( National Institute for Health Research) CLAHRC (Collaboration for Leadership in Applied Health Research and Care)
Keywords: Advance care planning; choice; end-of-life care; England; healthcare
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care > Health and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Item ID: 46827
Depositing User: Erica Borgstrom
Date Deposited: 18 Aug 2016 08:45
Last Modified: 10 Dec 2018 18:35
URI: http://oro.open.ac.uk/id/eprint/46827
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