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Recognising the agency of people with dementia.

Boyle, Geraldine (2014). Recognising the agency of people with dementia. Disability and Society, 29(7) pp. 1130–1144.

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DOI (Digital Object Identifier) Link: https://doi.org/10.1080/09687599.2014.910108
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Abstract

People with dementia have been assumed to possess weak or even no agency, so this paper provides a novel contribution to academic debate by examining their actual potential for agency. The author draws on findings from a qualitative study of everyday decision-making by people with dementia that aimed to identify the role of social factors (such as gender) in influencing their involvement in decisions. Whilst decision-making constitutes a form of deliberative agency, the research also identified when agency was alternatively habituated, embodied or emotional. The Economic and Social Research Council-funded research was undertaken in the North of England. Existing theoretical perspectives on agency are critiqued, particularly in relation to rationality, language and individualised agency. The study highlighted that people with dementia who lack deliberative capacity can nonetheless demonstrate creative capacity for agency. A more expansive concept of agency is needed in social science theory that is informed by the experiences of cognitively disabled people.

Item Type: Journal Item
Copyright Holders: 2014 Taylor & Francis
ISSN: 1360-0508
Project Funding Details:
Funded Project NameProject IDFunding Body
The social process of everyday decision-making by people with dementia and their spouses.RES-062-23-2038ESRC (Economic and Social Research Council)
Keywords: dementia; cognitive disability; agency; decision-making capacity
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care > Nursing
Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Item ID: 40970
Depositing User: Geraldine Boyle
Date Deposited: 29 Sep 2014 08:44
Last Modified: 23 May 2019 22:32
URI: http://oro.open.ac.uk/id/eprint/40970
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