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Mapping the impact of patient and public involvement on health and social care research: a systematic review

Brett, Jo; Staniszewska, Sophie; Mockford, Carole; Herron-Marx, Sandra; Hughes, John; Tysall, Colin and Suleman, Rashida (2014). Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations, 17(5) pp. 637–650.

DOI (Digital Object Identifier) Link: https://doi.org/10.1111/j.1369-7625.2012.00795.x
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Abstract

Background

There is an increasing international interest in patient and public involvement (PPI) in research, yet relatively little robust evidence exists about its impact on health and social care research.

Objective

To identify the impact of patient and public involvement on health and social care research.

Design

A systematic search of electronic databases and health libraries was undertaken from 1995 to 2009. Data were extracted and quality assessed utilizing the guidelines of the NHS Centre for Reviews and Dissemination 2009 and the Critical Appraisal Skills Programme (CASP). Grey literature was assessed using the Dixon-Woods et al. (2005) checklist.

Inclusion criteria

All study types that reported the impact PPI had on the health and/or social care research study.

Main results

A total of 66 studies reporting the impact of PPI on health and social care research were included. The positive impacts identified enhanced the quality and appropriateness of research. Impacts were reported for all stages of research, including the development of user-focused research objectives, development of user-relevant research questions, development of user-friendly information, questionnaires and interview schedules, more appropriate recruitment strategies for studies, consumer-focused interpretation of data and enhanced implementation and dissemination of study results. Some challenging impacts were also identified.

Conclusion

This study provides the first international evidence of PPI impact that has emerged at all key stages of the research process. However, much of the evidence base concerning impact remains weak and needs significant enhancement in the next decade.

Item Type: Journal Item
Copyright Holders: 2012 Blackwell Publishing Ltd
ISSN: 1369-7625
Project Funding Details:
Funded Project NameProject IDFunding Body
The National Centre for Involvement 2006-2009Not SetDepartment of Health
Keywords: primary care/general practice; health policy; public health; evidence base; patient and public involvement
Academic Unit/School: Faculty of Wellbeing, Education and Language Studies (WELS) > Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies (WELS)
Item ID: 38575
Depositing User: Sandy Herron-Marx
Date Deposited: 26 Sep 2013 09:51
Last Modified: 07 Dec 2018 10:19
URI: http://oro.open.ac.uk/id/eprint/38575
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