Lloyd, C. E.; Sturt, J.; Johnson, M.; Mughal, S.; Collins, G. and Barnett, A. H.
Development of alternative modes of data collection in South Asians with Type 2 diabetes.
Diabetic Medicine, 25(4),
Aims: previous research in the UK has established the difficulty of recruiting and collecting information from individuals whose main language is spoken and does not have an agreed written form. The aims of this study were 1) to develop culturally competent translations of two
questionnaires measuring diabetes self-care in languages with no written form and establish their face validity, and 2) develop acceptable methods of delivery with the potential for providing valid and reliable data for use
in research studies.
Methods: adults with type 2 diabetes from two minority ethnic groups whose main language is spoken (Sylheti and Mirpuri) were recruited via the Birmingham Heartlands hospital diabetes centre. Participants were invited to attend 5 focus groups to consider the content and
method of delivery of two questionnaires measuring knowledge of diabetes and confidence in diabetes self-care. Delivery methods were (i) pen & paper self-completion in Bengali/Urdu, (ii) pen & paper assisted completion in spoken language, (iii) partially-assisted
completion in spoken language, (iv) independent audio-delivery in spoken language.
Results: culturally competent content was achieved for both
questionnaires in both languages. The Mirpuri men and women groups preferred assisted or partially-assisted completion in spoken language. The Sylheti groups’ preference was for independent audio-delivery in spoken language.
Conclusions: the face validity of two questionnaires measuring diabetes self-care is established for Sylheti and Mirpuri, in four alternative delivery formats. The questionnaires are now ready for psychometric testing amongst minority ethnic populations, and the methods available for use by researchers to establish within-study feasibility.
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